MECFS

I designed the public-facing website for the ME/CFS research network at RTI International to communicate ongoing efforts, share research goals, and respond to growing public demand for transparency. The site needed to serve multiple audiences—including patients, researchers, and the broader public—while addressing a highly sensitive and often stigmatized condition.
Year
11.25
Scope
Branding
Timeline
8 weeks
Live project
Preview
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Condition-aware experience design.

CHALLENGE
Rebuild trust with a historically underserved community Communicate progress with empathy and clarity Reduce stigma while maintaining scientific credibility Represent multiple research centers without bias Present complex research in a low-effort, accessible format Support users with limited energy and attention Enable non-linear engagement Create a scalable structure across contributors
MY APPROACH
Clear, Low-Cognitive Entry Points on the Homepage reduced cognitive load and allowed users to quickly access what mattered most to them. I designed for non-linear engagement, allowing users to pause and resume without losing context—supporting the energy limitations common within the ME/CFS community. I introduced a system that allowed users to bookmark progress and return later, enabling engagement across multiple sessions without losing context which reduced pressure and supported real user limitations. To address internal dynamics between research centers, I created a layout system that ensured equal visibility and avoided hierarchical emphasis. 👉 Reinforced trust and collaboration I selected imagery that emphasized authenticity, diversity, and emotional honesty—avoiding exaggerated or clinical portrayals. 👉 Helped users feel seen and respected Supported increased participation in ME/CFS research, contributing to a registry of over 4,000+ participants with steady weekly growth Helped foster strong community trust and engagement, reflected in high user satisfaction and willingness to recommend participation Contributed to a broader NIH-funded initiative enabling data sharing, collaboration, and large-scale research infrastructure Established a scalable brand and communication system that extended across additional research and impact websites Contributed to increased awareness and participation in ME/CFS research, supporting a registry of over 4,000 participants and sustained weekly growth, while helping foster trust and engagement within an underserved community.
RESULTS
Supported increased participation in ME/CFS research, contributing to a registry of over 4,000+ participants with steady weekly growth Helped foster strong community trust and engagement, reflected in high user satisfaction and willingness to recommend participation Contributed to a broader NIH-funded initiative enabling data sharing, collaboration, and large-scale research infrastructure Established a scalable brand and communication system that extended across additional research and impact websites
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